Reacting is the worst. I hated reacting long before my body was compromised with MCS because I am a planner by nature. I can act spontaneously, improvise even, but those are situations where I am free to choose. Reacting implies something has happened to me and my actions are dependent on and limited by that. I … Continue reading
I had some extended family visit over the holidays and a familiar pattern played itself out again. Given any 10 day stretch of time, there will be at least one 12-24 hour period when I don’t feel well, when I don’t feel like my normal self. Usually it’s a mild to moderate reaction to some … Continue reading
It seems that there are more and more people in my far flung network of friends and acquaintances who are coming to grips with chronic illness in their lives of. Part of this is probably because my peers are aging and what used to be a young person’s physical weakness has settled into a middle … Continue reading
I did not stay vigilant on one of my renovation guidelines and so it all went to hell. Which is why I should call them rules, not guidelines, dammit. Despite the small size of the job, the project has involved a plumber, electrician, carpenter, tile guy, and air conditioning company. Apparently, once you get into … Continue reading
Even though I continue to use the R word, TILTed folks don’t really do renovations. That word implies optional work that improves a home’s aesthetics. We don’t fix aesthetics, only functionality and safety. … Continue reading
A Question… How do we deal with the pervasive and chronic nature of TILT? How do we escape something that effects every aspect of our lives? How do we think of ourselves separate from it? I don’t mean physically; obviously, if we could physically escape chemical sensitivity that would be very big news indeed. I … Continue reading
It’s been a while since I actively checked in with some of my resource and advocacy sources. They send me information (which I appreciate) but sometimes (a lot of the time) it builds up til I choose to really focus on it in hopes that I will also then DO something about it. This time … Continue reading
I pulled off another family summer road trip last month. When you live in FL, you don’t want to vacation at the beach, you vacation in the mountains or desert, especially for the benefit of the children who think palm trees are normal foliage. So we went to the anti-Florida, which we deemed to be … Continue reading
Since I have healed enough to be considered an moderate reactor, I feel like I now live with my feet in two worlds. One is a largely online community; we have in common something that happened to us. They understand my struggles, my fears, and my negotiations as a fellow spoonie . My second world … Continue reading
I got the most wonderful letter from a fellow canary which inspired me to some soul searching and a heartfelt conversation between us. She has graciously agreed to let me share her initial message to me and my response to her. Hello and thank you for your wonderful website! I am a 39 year old … Continue reading
