It seems that there are more and more people in my far flung network of friends and acquaintances who are coming to grips with chronic illness in their lives of. Part of this is probably because my peers are aging and what used to be a young person’s physical weakness has settled into a middle … Continue reading
Since I have healed enough to be considered an moderate reactor, I feel like I now live with my feet in two worlds. One is a largely online community; we have in common something that happened to us. They understand my struggles, my fears, and my negotiations as a fellow spoonie . My second world … Continue reading
I got the most wonderful letter from a fellow canary which inspired me to some soul searching and a heartfelt conversation between us. She has graciously agreed to let me share her initial message to me and my response to her. Hello and thank you for your wonderful website! I am a 39 year old … Continue reading
Every year about this time, I strive to balance the pervasive holiday cheerful frenzy with the reality of a chronic illness. Our family manages to pull off a lot of Christmas traditions despite my TILT; we have a tree, ornaments, some home decorations, gift giving and receiving. I help with the Christmas parties in my … Continue reading
The viruses won the battle in our house the last few weeks and the kids and I went down. The germs will not be allowed to win the war but the blog has been silent while we struggled. We are nicely recovered now, just in time for extended family to come visiting. Fortunately, these are … Continue reading
I am TILTed but my children are not. They certainly have the possibility to become so, thanks to their genetic makeup. We already see their immune systems troubles, especially in my daughter. But they do not currently have MCS. So, do I treat them like they have this illness, like they might develop this illness, … Continue reading
12,000 Canaries Can’t Be Wrong by John Molot, M.D. Hardcover 272 pages. 2014. Toronto: ECW Press. Available from Amazon or ECW Press. Learn more about the author at http://www.johnmolot.com. Dr. John Molot is a Canadian physician with thirty years experience in clinical practice, expert opinion and medical advisory roles in environmental medicine. His recently published … Continue reading
I think the worst part of having this restrictive disability is feeling useless. I am lucky enough to have survived the other horrible parts like the phase where I thought I was going crazy, the stage where I believed doctors who labeled me with somatoform disorder, and the many times where I explained this illness … Continue reading
In looking back over my little blog that I started 15 months ago, I am reminded of quite a few victories. That’s not why I was looking over old posts; in fact, I cannot remember why I was reviewing it. It probably had something to with a big picture grand plan which I promptly forgot. … Continue reading
One of the most disturbing conversations I have ever had with a doctor was during my month at COEM (Center for Occupational and Environmental Medicine). That was an overwhelming time for me, and I suspect many of my fellow patients can relate to that. After years of failing health and the medical profession failing me, … Continue reading
