Since I have healed enough to be considered an moderate reactor, I feel like I now live with my feet in two worlds. One is a largely online community; we have in common something that happened to us. They understand my struggles, my fears, and my negotiations as a fellow spoonie . My second world … Continue reading
I got the most wonderful letter from a fellow canary which inspired me to some soul searching and a heartfelt conversation between us. She has graciously agreed to let me share her initial message to me and my response to her. Hello and thank you for your wonderful website! I am a 39 year old … Continue reading
I had too many exposures last week and am feeling the effects this week so I have not been able to pull off a substantive post. However, feeling physically down meant that good news really stood out. In addition to the fact that my new happy summer shoes have finally outgassed enough to wear, I … Continue reading
I don’t ever post when I am emotionally knocked down low. I wait until I have regained some sort of equilibrium, then I sort through my thoughts and feelings, put them in order, and then write them down and share them here. But I thought I might try something outside my comfort zone, and share … Continue reading
I have never been a heavy bath or beauty product user and only did housework because it must be done, but developing TILT at age 25 and then living it with for about 20 years now…I really believe less is absolutely more. We just really don’t need all that stuff. Within the small set of … Continue reading
I began writing some thirteen years ago after I was inspired by The Human Ecologist‘s request for readers’ thoughts on science as an opposing force to the patient experience. While I certainly feel the tension between the two, I do not want to ever think of them as being foes and I wrote a response … Continue reading
I’ve been trying to stay more up to date on scientific articles that relate to health problems that challenge our household. We’ve got both chemical and food intolerance problems in our TILTed home. Some are allergies we were born with, but most are sensitivities that have developed, leaving us in the limbo of unknown disease … Continue reading
Reforming the Toxic Substances Control Act (TSCA) has been in the news due to the recent bills under discussion in the Senate’s Committee on Environment and Public Works (EPW). A lot of y’all know plenty about it, probably more than me, so I am reluctant to do a huge review here. But I thought a … Continue reading
When we first moved into our home 15 years ago, I was very ill and desperate. To clarify, I was very ill, my husband and I were both very desperate. Moving to the beach was a last ditch effort to survive. Even though in 2000 we did not have an active internet community to pool … Continue reading
Even if you are not living with an invisible illnesses (like MCS, ME, Fibromyalgia, etc) you have probably been hearing quite a bit about the use of genetic testing to personalize medical treatment. It’s largely being used to assess risks, with varying margins of inaccuracy, for certain diseases, especially cancers. Genetic testing, especially analyzing the … Continue reading
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