I began writing some thirteen years ago after I was inspired by The Human Ecologist‘s request for readers’ thoughts on science as an opposing force to the patient experience. While I certainly feel the tension between the two, I do not want to ever think of them as being foes and I wrote a response … Continue reading
There’s always something. Fifteen years ago during my second and worst health crisis, there was not always something; instead it was many things all the time that were terrifying. See the difference? Now that my chemical and food sensitivities are distinct symptomatic reactions, I shouldn’t be described as having chronic symptoms. And yet…there is always … Continue reading
I cannot seem to get a new post finished this holiday season. I have quite a few at different stages but nothing really presentable yet. So here’s another re-post. This was originally published in The Human Ecologist, HEAL’s quarterly journal, in the Fall of 2008. Parenting with MCS My health crisis almost a decade ago … Continue reading
Every year about this time, I strive to balance the pervasive holiday cheerful frenzy with the reality of a chronic illness. Our family manages to pull off a lot of Christmas traditions despite my TILT; we have a tree, ornaments, some home decorations, gift giving and receiving. I help with the Christmas parties in my … Continue reading
The viruses won the battle in our house the last few weeks and the kids and I went down. The germs will not be allowed to win the war but the blog has been silent while we struggled. We are nicely recovered now, just in time for extended family to come visiting. Fortunately, these are … Continue reading
I am TILTed but my children are not. They certainly have the possibility to become so, thanks to their genetic makeup. We already see their immune systems troubles, especially in my daughter. But they do not currently have MCS. So, do I treat them like they have this illness, like they might develop this illness, … Continue reading
I am still recovering from my misadventures in the workplace. I hate being back in a state of chronic symptoms rather than a baseline of good health with exposure related symptoms. Sigh. It’s getting better but I am not back where I was before. It’s all been frustrating and dissapointing. Then just when I needed … Continue reading
