I’m not sure I will ever publish this even though I have been thinking about it for twenty years. As long as I’ve been sick, I’ve been trying to put all the theories, studies, and anecdotes about TILT into some unified cohesive etiology and treatment. This is hubris on an impressive scale because I am … Continue reading
Reacting is the worst. I hated reacting long before my body was compromised with MCS because I am a planner by nature. I can act spontaneously, improvise even, but those are situations where I am free to choose. Reacting implies something has happened to me and my actions are dependent on and limited by that. I … Continue reading
It seems that there are more and more people in my far flung network of friends and acquaintances who are coming to grips with chronic illness in their lives of. Part of this is probably because my peers are aging and what used to be a young person’s physical weakness has settled into a middle … Continue reading
I did not stay vigilant on one of my renovation guidelines and so it all went to hell. Which is why I should call them rules, not guidelines, dammit. Despite the small size of the job, the project has involved a plumber, electrician, carpenter, tile guy, and air conditioning company. Apparently, once you get into … Continue reading
Even though I continue to use the R word, TILTed folks don’t really do renovations. That word implies optional work that improves a home’s aesthetics. We don’t fix aesthetics, only functionality and safety. … Continue reading
I got the most wonderful letter from a fellow canary which inspired me to some soul searching and a heartfelt conversation between us. She has graciously agreed to let me share her initial message to me and my response to her. Hello and thank you for your wonderful website! I am a 39 year old … Continue reading
I have never been a heavy bath or beauty product user and only did housework because it must be done, but developing TILT at age 25 and then living it with for about 20 years now…I really believe less is absolutely more. We just really don’t need all that stuff. Within the small set of … Continue reading
When we first moved into our home 15 years ago, I was very ill and desperate. To clarify, I was very ill, my husband and I were both very desperate. Moving to the beach was a last ditch effort to survive. Even though in 2000 we did not have an active internet community to pool … Continue reading
Even if you are not living with an invisible illnesses (like MCS, ME, Fibromyalgia, etc) you have probably been hearing quite a bit about the use of genetic testing to personalize medical treatment. It’s largely being used to assess risks, with varying margins of inaccuracy, for certain diseases, especially cancers. Genetic testing, especially analyzing the … Continue reading
There’s always something. Fifteen years ago during my second and worst health crisis, there was not always something; instead it was many things all the time that were terrifying. See the difference? Now that my chemical and food sensitivities are distinct symptomatic reactions, I shouldn’t be described as having chronic symptoms. And yet…there is always … Continue reading
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